It has been an amazing experience to be at the famous Mayo Clinic. Lizzie was admitted to St. Mary's Hospital. The treatment we received was world class from the moment we entered the hospital. For example – in her room she has total control of the temperature and lights. Every room has its own refrigerator, flat screen television with100 movies on demand (watching Eat, Pray, Love as I type this!). There is a pull out sofa bed for guests. The shower looks like the Hilton. Amazing.
We leave with a tentative diagnosis of MS. I did not know this but they can not officially called it MS until her second episode. But it seems to be what we are dealing with. We are driving back home and re-admitting her to the hospital in Oklahoma. She will receive five plasma exchanges over two weeks.
We are relieved to have a diagnosis and to know what we are dealing with. I appreciate everyone's support. I have been totally taken back by the love and support from friends near and far.
They anticipate six months for recovery. There are plans to be made and arrangements to consider. I have no doubt that we are moving steadfast in the direction of healing. There are many things I plan to do for Lizzie once she is home again – I appreciate all the referrals and suggestions many of you emailed. I have followed up on many!
With Deep Gratitude,
Sally
Glad to hear you have a tenative diagnosis. This may have already been suggested to you but have you considered hyperbaric oxygen therapy treatments(HBOT)? It seems to be showing great promise with many diagnosis that have a neurological basis. You will find info by searching google. A lot of people have found success combining HBOT with nutritional supplements and diet eliminating gluten, casein and processed foods. Definately something to check into. Our local nutritionist has been wonderful in treating my son’s ADHD/borderline Aspberger’s. He does do consults all over the country or may be able to help you locate somebody local. Send me an e-mail if you want more info on him or our experience. Christine
cherring2010@comcast.net
Continuing to send prayers as you deal with the next hand. At least you now have a tentative diagnosis. May God continue to show you and your family the right direction to bring healing to your daughter.
You are such an amazing woman Sally! Liz is very lucky to have you as her mother. My thoughts and prayers continue always!!!
I thought Lizzy might have sarcoidosis. Thankfully she was able to go to Mayo and get her diagnosis and can begin her road to healing. I have 2 friends who have been successfully treating their MS for several years. It isn’t easy but with the support of their family, friends, medication, positive attitude and faith they are leading full and happy lives. I pray the same for your sweet Lizzy.
Holding you in my heart. {{}}
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