Today, it hit me. My sweet daughter has been given another chance at life with the amazing drugs for MS. I am on my knees in gratitude. Lizzie is walking with a cane, back at work this week and improving daily. While there are still impairments, her quality of life has returned.
My sister, on the other hand, has Huntington's Disease. She has never been given another chance. There is no drug for her. Over the last 10 years, I have witnessed her slowing slipping away. The best friend I once had, slipped away years ago. Sometimes, looking into her eyes, I see that vibrant woman who made me laugh until I would cry. Sometimes, she will smile at me like she used to do, sharing that secret bond, only sisters hold. Those moments are rare.
I saw my sister today and my heart is broken over and over and over again. She has been in a nursing home for the past five years. Recently, the disease has really begun to impair her ability to eat. She has lost a huge amount of weight. She can no longer walk.
Please join me in supporting research efforts in this horrible disease that has taken and is taking my best friend. Anything helps. And know, there are families like mine who appreciate your care beyond words.
Huntingtons Society Donation Page
Oh Sally, I’m so sorry to hear of this. Life sure presents some bumpy paths, we are such tender beings. Keeping you all in my thoughts and prayers. XO Lisa
I will lift you and your family up in prayer. I know first hand the sadness of living with Huntington’s disease. My husband has lost his father and two sisters to the horrible disease. He also has a brother living with it right now.
I am happy to hear your daughter is doing so well!
Thank you so much. I appreciate your sweet comments.
I can only imagine your pain and sadness when you visit your sister. I have one sister also, and can’t even imagine what it would be like to see her in a situation like yours. However, I do know that God is the only one who can bring comfort to body and soul. About 40 years ago, I lost my first daughter to Leukemia when she was 2 and a half (diagnosed at 6 mos.) So, I have experienced the soul healing power of the love of God. My prayers will be with you, and your daughter.
Thank you so much Carmen. It means so much to have your wise words that springs from experience. Big hugs.