I am so grateful to report to you that Lizzie is improving! She has been home now for three weeks and we have already seen great progress! It is amazing! She has gone from being wheelchair bound to using a walker. In fact, yesterday she held her father's arm and walked without her walker. We were so excited none of us could sleep!
While we are seeing enormous healing – it is going to be a slow journey. She still cannot be left unattended. She needs someone with her to assist when her body tires and gives out. Exhaustion is a huge issue as well as getting her feet to work properly. She is on her way and it is nectar to my mommy heart!!
We went to a specialist on Thursday – a doctor who is a leading researcher. He exceeded my expectations (and they were high!). He is going to put Lizzie on a high powered anti-inflammatory drug that should give her body a must needed reprise from her nearly 6 month episode. He did testing and discovered things about Lizzie's condition that even Mayo did not discover. I found myself teary eyed with a deep and profound appreciation for a doctor with this level of expertise. It is a treasure when you have a loved one in dire need of help!
I must warn you, I have found a new level of challenge working and coming home to care for my daughter. I am faced with finding a balance between work and home. Being an over-achiever – this is not easy! Some nights I have fallen asleep before I could get to posting! I have also found myself reading comments and then forgetting to respond! Forgive me as I find a new relationship to time and commitment. It reminds me of when I had babies. AND our children are so worth it!
Mercy! How the blogging community is priceless! Thank you for all the love and care.
Sally
Hi Sally,
I have been absent from blogging for a little while and am just getting caught up with reading some of my favorite blogs. So glad that Lizzie is doing better! My thoughts and prayers are with you and yours.
Wish I lived close enough to come help you get your room ready for the school year so that you could take some time to just relax as well as some time to spend with your daughter as she recovers. Hope that she will continue to improve. So glad that they have found new meds and new info. about her condition.
Hugs and prayers to you,
Colleen
Sunrise Learning Lab
Sally, I’m so happy to hear that your daughter’s condition is improving!
Colleen,
I appreciate your kind words. I really am feeling the power of all the prayers coming to fruition. Thank you for all your care!! It means so much!
Sally
I’m so happy to hear this update! We will continue to pray for strength and improvement for you all. (Jonni)
So happy to hear of the healing progress. Please don’t worry about us readers, we all love and support you no matter when you blog!!
Prayers for your continued strength during this time and praise for your daughter’s health! And please, please, please do not worry about posting. Blogging CAN wait. Be where you need to be.
Such Good News about Lizzy!!
I am so happy to hear good news about Lizzie! I really hope that she will continue to improve!
Praying for continued wisdom, answers and healing for Lizzy and strength and rest and balance for you! May God continue to shoe Himself!
Just discovered this post about Lizzy. I hope she is still improving. I’ll be praying for her now, too. Keep believing!