Thank you so much for all the love, emails, messages of prayer and thoughts for my family and daughter. It has meant so much to us all. I wanted to let you know that my daughter was admitted into the hospital today for steroid infusions, further testing (more MRI's and such) and finally, rehab to relearn how to walk and manage her mobility.
This weekend I had that deep intuitive feeling as a mother that she was in crisis and needed immediate intervention. Our neurologist is out of the country right now so when I called his office and was asked to leave a message for the nurse (who would have to call us after 4pm) – I left a very straight forward question. What do I do now that she has declined to the point of possibly needing home health care? I received a call back within the hour, had an appointment within 4 hours and my daughter was on her way to the hospital within 5 hours from her appointment.
It reminds me how much power there is in a question. Questions open doors, illuminate thinking and sometimes contain the answer within them.
I am so grateful for the support and love of friends, family and blogging community. I am uncertain what will be needed next. I know that I will seek more aggressive treatment if this does not work. I appreciate all the articles, doctors and methods many of you have shared. I will be investigating them all as soon as we are out of the current crisis.
Hugs to you each.
I am so sorry to hear about your sad times. Certainly there are many levels of frustrations you must be going through. I was lifted when I heard your voice had been heard. XOXOXO to your family!
Thank you for keeping us posted…remembering your daughter and family in my prayers at this most difficult time for you.
Molly is keeping me updated. You are all continuously in my prayers. You are my family, and I love you guys so much!!
Hugs to you as well. I have not been following your blog long, and am just catching up after a few weeks away. I am so sorry to hear about the pain that you and your family are experiencing during this time, both emotionally and physically, and especially sorry for your daughter and her feelings. I cannot completly understand what you are going through, but do have a daughter who is sick and often apologizes for crying. It’s heartbreaking as a mother when all you want to do is take their pain away. Just know that she was given to you (and to your family) as a blessing. God knew that you could give her your best. You are in my family’s prayers as well, and although I don’t know you, if there is anything I can do to help, please let me know.
Thank you everyone for your lovely thoughts. It means so much to us all.
Sally, just wanted you to know that I was thinking of your daughter this evening and came by to see how she is feeling. {{}}
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